> Family Caregiver Support Resources

*Elder Services of the Merrimack Valley, Inc. is not affiliated with the following organizations. These resources are examples of available supports to caregivers and their families. The links listed below are intended for informational use only.

Click here to visit our Family Caregiver Support Program page.


General Caregiving Information

AARP
AARP.org/Caregiving
Support Line: 1-877-333-5885, For Spanish- 1-888-971-2013
The AARP Caregiving Resource Center offers expert advice and resources for your senior care needs. Find tips on care for yourself and your loved one, information on benefits, insurance, senior housing, and much more.

The Caregiver Space
thecaregiverspace.org
The Caregiver Space provides a safe and open space where you can be real about what it’s like to care for someone dealing with a serious disability or illness. The community of caregivers is a place to ask questions, share experiences, get real answers, or just get things off your chest. This website is always accessible, so you can look forward to finding comfort and relief at any hour of the day or night.

National Family Caregiver Alliance
caregiver.org
Family Caregiver Alliance is the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care for loved ones at home. The services, education programs, and resources FCA provides are designed with caregivers’ needs in mind and offer support, tailored information, and tools to manage the complex demands of caregiving.


Caring for a Loved One with Addiction

Learn2Cope
Learn2cope.org
Local Office: 508-738-5148
Learn 2 Cope is a peer support network for families dealing with addiction and recovery with 23 chapters throughout Massachusetts and one in Florida. Learn to Cope is a non-profit peer-support network that offers support, education, resources, and hope on both a local and national level. Learn2Cope’s online family discussion board is a private place where people from all over the world can communicate confidentially with others who “have been there”. With over 8,000 members registered on this forum, there is a wealth of information, knowledge, and resources that can be accessed 24/7.


Brain Injury

Brain Injury Association of Massachusetts
biama.org
Helpline: 1-800-242-0030
Brain Injury Association-MA provides Support & Resources to brain injury survivors and their families; Prevention Programs to educate the public on the impact of brain injuries; Education & Training for brain injury survivors, caregivers and professionals; and Legislative Advocacy for improved community services and safety laws (seat belts, helmets).


Cancer

American Cancer Society
Cancer.org
Helpline: 1-800-227-2345
The American Cancer Society is a nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. The American Cancer Society’s mission is to save lives, celebrate lives, and lead the fight for a world without cancer.


Down Syndrome

National Down Syndrome Society
Helpline: 800-221-4602 M-F 9am-5pm
The National Down Syndrome Society is an organization that offers support to people with Down Syndrome, their families, friends, teachers, and coworkers, and educates the general public about Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.


Grandparents and Kinship Caregivers

The Commission on the Status of Grandparents Raising Grandchildren
MassGRG.com
The Commission’s primary purpose is to serve as a resource to the Commonwealth on issues affecting grandparents and all relatives raising grandchildren. The interactive website is devoted to fostering education, networking, research, programs and support to grandparents and all relatives raising grandchildren.

Federation for Children with Special Needs
Fcsn.org
Helpline: 617-236-7210
The Federation for Children with Special Needs provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. They are committed to listening to and learning from families, and encouraging full participation in community life by all people, especially those with disabilities.


Memory Loss/Cognitive Impairment

Alzheimer’s Association Massachusetts/New Hampshire Chapter
http://www.alzmass.org/
Care Consultation Line: 800-272-3900
The Alzheimer’s Association works on a global, national and local level to provide care and support for all those affected by Alzheimer’s and other dementias. We are here to help.The Massachusetts and New Hampshire Chapter is one of over 70 Alzheimer’s Association chapters serving communities across the United States.

The Association for Frontotemporal Degeneration
theaftd.org
Helpline: 866-507-7222
The Association for Frontotemporal Degeneration is a non-profit organization with a mission to improve the quality of life of people affected by Frontotemporal Degeneration and drive research to a cure through research, awareness, support, education, and advocacy.

Lewy Body Dementia Association
Lbda.org
Helpline: 800.539.9767
The Lewy Body Dementia Association  is a nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.


Mental Illness

National Alliance on Mental Illness (NAMI) Massachusetts Chapter
Namimass.org
Helpline: 1-800-370-9085
The mission of NAMI Massachusetts is to improve the quality of life both for people with mental illnesses and for their families. NAMI seeks to extend education, support, and advocacy programs to reach out to all Massachusetts consumers and their families; improve the public’s awareness and understanding of mental illnesses; and advocate at all levels to ensure that all persons affected by mental illnesses receive, in a timely fashion, the services that they need and deserve.


Neurological Disorders

MS Society
nationalmssociety.org
Helpline: 1-800-344-4867
The National Multiple Sclerosis Society and its network of chapters nationwide help people affected by multiple sclerosis by funding research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with multiple sclerosis and their families.

Parkinson’s Disease Foundation
pdf.org
Helpline: 800-457-6676 M-F 9am-5pm
The Parkinson’s Disease Foundation is a leading national presence in Parkinson’s disease research, education and public advocacy. The foundation is working for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research while supporting people living with Parkinson’s and their families through educational programs and services.


Stroke

American Stroke Association
Strokeassociation.org
Warmline: 1-888-4-STROKE
The American Heart/Stroke Association is a non-profit organization that fosters appropriate cardiac care in an effort to reduce disability and deaths caused by cardiovascular disease and stroke. Here you will find information, tools, and resources to help you on your journey.


Veterans

Department of Veteran’s Services
mass.gov/veterans/
HelpLine: 1-855-260-3274 M-F 8am-8pm
The mission of the Department of Veterans’ Services is to be the chief advocate for the nearly half-million veterans of the Commonwealth and their families. Veterans’ Services Officers in every city and town in the Commonwealth help veterans learn about, apply for, and in some cases receive benefits.